99: Overcoming a "Failure to Thrive" Diagnosis | Debi LewisMar 22, 2022
Debi Lewis spent years trying to get an accurate diagnosis for her daughter - something other than "failure to thrive." She shares the challenges of navigating a broken medical system and the journey her family went through to finally get answers.
- "Why I wrote the book was because it wasn't my fault. And it isn't your fault parents out there whose children are diagnosed with failure to thrive, it's a very vague diagnosis and should be the trigger for the medical system to do much more thorough investigation, not point the finger at mom and ask mom to give the child another protein shake. This book is for those moms." - Debi Lewis
- "Coordination of care is not something that's built into our medical system here. There's not a lot of team meetings when it comes to a kid who's not actively hospitalized." - Debi Lewis
- "This idea that, some foods are good and some foods are bad and unless you have an allergy or a condition, like what Sammy was diagnosed with... Food is neutral. It's food. It's fuel. And having a healthy relationship with food... was much more important than whether or not my daughter liked kale." - Debi Lewis
00:48 - The impact of diet on kids
05:14 - What to do when medical professionals don't seem to be listening
12:21 - How to know when a diagnosis isn't right
14:21 - Creating a 504 plan
16:30 - Keeping a healthy relationship with your kids through the diagnosis process
20:30 - Find Debi's book!
- Connect with Debi
- Book: Kitchen Medicine: How I Fed My Daughter out of Failure to Thrive
- Debi's book is about learning to feed her daughter through medical challenges. It’s for people who cook for fuel and those who cook for love; for those who see the miracle in the growing child and in the fresh peach; for matzo-ball lovers and the gluten-intolerant; and for parents who want to feed their kids without starving their souls.
- Watch Episode on YouTube
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